New Guest blog post by Helen Sims ‘Off Day’

Helen Sims

I think I’m allowed an ‘off day’ occasionally. With everything I’ve been through already, and will continue to go through until the day I die. I should allow myself an ‘it’s not fair’ day sometimes, because it isn’t.

It isn’t fair that I can’t walk or stand without help, it isn’t fair that I can’t have a job or a baby, and it isn’t fair that I am usually tired and in pain. My Cerebral Palsy is not my fault. It is a result of a hospital mistake, for which we have never received an apology.

They could probably argue that I was a ‘Prem’ baby and it could’ve happened anyway. Busy, overworked staff who didn’t notice my faulty heart monitor until it was almost too late. I know I’m lucky to be here at all, but the damage was done.

Anyway, all I’m trying to say, on behalf of all of us, is never underestimate the amount of strength it takes to cope with our daily lives and accept ourselves.

Now we are being told that our lives and our struggles are worthless.

We are ‘scroungers’ and when we get to assessment, our disabilities or illnesses suddenly don’t exist! Well excuse us for being hurt, frustrated and angry!

This situation just compounds everything we cope with already. I feel ok today, but some days I want to collapse in a quivering heap because I am so sick of struggling and having to fight for things that others take for granted.

The government claims that up to 75% of disability benefit claimants are fraudsters, and they are using doctored figures to justify harsh, callous and cruel benefit cuts which are damaging the lives of people like me. The real figures are very much lower. Only 1 in every 200 claimants are ‘faking!’

The fact that up to 32 people per week are taking their own lives out of fear, desperation and feeling that there is nowhere to turn is being hidden and ignored.

Put yourselves in our shoes, just for a minute or so. How would you feel?! All we ask is a little bit of support from society and the government. I will fight against this with every fibre of my being. They will NOT win! Simply share if you’re with us. Thank you.


One Comment Add yours

  1. jaynel62 says:

    A brave and honest assessment of living with a disability.

    Thanks Helen, you’ve summed up how I feel x

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