Fibromyalgia Awareness day…

Morning Folks,

Well, its Fibro day again where did that year go? Answers on a post card please 🙂

I wanted to have something profound and engaging to say today but to be honest I just don’t have the spoons…

I had two craft fairs to do over the weekend exhausting but fun…

And I’m also setting up a WordPress site for a new piece of action I’m involved in called #women2gether, This is a possible legal challenge to the ICC to investigate the UK government and other countries governments for the targeting women as well as others with Austerity Legislation. This is a group of women that are bringing this challenge so it’s primarily about women and how austerity measures and legislation is targeting women and causing both extreme hardship and death…

So that’s exciting and scary and a great deal of work. 🙂 spoon heavy work lol…

The other thing I’m involved in is FibroME for Action…a group that me and a Beth Greg have put together to look in to how WHO and NICE have inaccurately designated both Fibromyagia and ME and looking at ways to lobby to get a better designations for our conditions which would hopefully lead to better care and services.

There has been a great deal of research going on in the last year that is showing more and more that both Fibro and Me are complex physical neurological immune system malfunctions and that is also very exciting and hope giving… Perhaps for the first time Dr’s are seeing us, they are slowly realising that this is a serious epidemic of not neurotic 30 something women/men but a serious public health issue the proverbial canary in a coal mine something the ME community have used well to their advantage although there is still a long way to go…

Part of this action is also fighting the Psychotherapist desire to get Fibro and ME designated as mental health issues and looking at how the DSM5 will affect those who may be wrongfully diagnosed with a Mental Health problem because of the vagueness of the new Somatic illness criteria…

So as you can see there are good reasons for my not doing a long-winded pice but i hope this gives an overview of the actions I’m involved in and that you can be involved in to. I will pop up links to all the groups, blogs twitter tags that will lead you to actions you can get involved in should you wish to do so… lol tempted to say this blog will self destruct in five seconds but i think that just shows my age 🙂

Have a lovely restive Fibro day sending hugs and spoons to all… Dxxx


FibroMe for Action Blog… brand new so bare with…

FibroMe for Actions Community Facebook group…

Women2gether blog… Also new …

@women2getherblog … #women2gether




9 Comments Add yours

  1. ravenswyrd1 says:

    Reblogged this on Fibro&ME and commented:

    Fibromyalgia Awareness Day Blog from me at Ramblings of a Fibro Fogged Mind… Dxxx

  2. jaynel62 says:

    Reblogged this on jaynelinney and commented:
    As a fellow Fibro sufferer I share D’s wish for a Peaceful & pain free (relative) Fibromyalgia Awareness Day

  3. beastrabban says:

    Reblogged this on Beastrabban’s Weblog and commented:
    News from an activist campaigning for Women2gether, against the austerity cuts that are hitting women the hardest. On the Fibromyalgia and ME fronts, there is growing evidence that both are complex neurological disorders caused by the malfunctioning of the immune system, and not more purely mental illnesses, as currently considered by WHO and NICE. Away from such serious issues, the Mind’s mention of spoons keeps reminding me of Private Eye’s ‘Me and My Spoon’ column, which leaves me wondering if it’s a deliberate reference to Lord Gnome’s mighty organ?

    1. ravenswyrd1 says:

      I think spoons comes from a piece written by a lupus sufferer… she used spoons to help her friend understand the limits placed upon those with chronic fatigue. .. if you google spoon theory it should pop up…Dxxx

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