With Fear and Loathing in Equal Measure

I’ve been out of it a bit… did you notice? Lol… Trying to make work pay… failing miserably and looking after hubby and son… To be honest I felt I had nothing else to contribute to the fight, to this world that hates those of us unfortunate enough to be Ill or disabled and I’d…

 The Long Road Part1 (or Our Story Part 4)

Hi folks, well that time out really was a time out… lol  The last part of our story was in Jan 2015 and it’s now July 2017, and what a long road we have been on… At the end of the last our story post, J’s surgery had been cancelled, the Drs decided to stop…

Fibromyalgia Awareness day…

Morning Folks, Well, its Fibro day again where did that year go? Answers on a post card please 🙂 I wanted to have something profound and engaging to say today but to be honest I just don’t have the spoons… I had two craft fairs to do over the weekend exhausting but fun… And I’m also…

On Being a Burden

I guess this is a post ive been avoiding really as it’s a subject I try to avoid thinking about at all costs. When I first became ill I was at the end of my first year of a degree in Studio Ceramics I had my future planed out.  I would make wonderful ceramics by…

Our Story, ESA, PIP, HB and Access To Work

Hi peeps this is a post about Access to work inspired by Kaliya Franklin’s blog post The ‘Scrounging Scum’ to ‘hard working, tax credit claiming, socially acceptable scrounging’ journey  But it’s also a way for me to get some stuff out there so it’s not only in here anymore… *Warning* it will be long… As most…

FibroGirls call to Action

Hi Folks its been a long time and ill do a blog post soon that explains that, but first A new project… Myself and fibrogirl with a group of other campaigners are going to start a campaign for the correct classification of Fibromyalgia and ME. This was triggered by a hastily removed article yesterday that…

Sue Marsh’s Open Letter To David Cameron

I know ive not been around since london but to be honest ive been wiped out both physically and mentally and unable to really get it together. On top of which my sons been ill just a virus but it takes its toll on sleepless nights… Anyway this piece is Written by Sue Marsh. and Cross posted…

A Mother’s Story Update

A few months ago Debbie was kind enough to post up a blog piece for me about my Son and his mental health issues. How difficult it was, how guilty and alone I often felt. In particular how I yearned for glimpses of my funny, loving sensitive boy.   Things move on as they do,…

Where to Turn? A mothers story of her sons MH crisis

Today I have a guest blog post from a friend who wants to remain anonymous simply to protect those around her… This post is a harrowing account of a mother trying to help her child with mental health issues and how the system is failing both the parents and the young  kids who are trying…

More Conditionality for the Sick…

It seems that the sick are to be subjected to more conditionality to receive sickness benefit. The government plan to announce a new 25 million  trial scheme (could they not think of better things to spend that much on?), possibly targeting alcohol and drug addicts. The scheme will force those on sickness benefit to accept…