Tag Archive: PIP


J was home but in a lot of pain and discomfort, we reapplied for ESA and J was awarded support group. Not surprisingly as he couldn’t move without someone pulling his leg as it was lifted or moved to the side or lifted down, which meant he couldn’t go anywhere without help. Once upright with crutches he was kind of ok as gravity acted as a pulling motion, I try to explain it to people as; do you remember those little wooden toys kids have, usually an animal of some sort. They worked by pressing a button underneath and as you pressed it the animal would collapse and when you let it go, it would miraculously ping back up to standing, all the seperate bits back together (held by elastic). J’s leg was like that, the tension had to be held to keep the cement spacer in line with his bones if it wasn’t well let’s just say we all became familiar with the sound of J screaming. He would get shooting pains as well that would make him yelp in pain and some times literally jump in his seat. He would get odd sensations of wetness or a sensation of someone touching his leg, and neuropathic pain as well. He almost always got these sharp painful pains just as he was falling asleep…

The first time he had to have the dressing changed was awful, the poor nurses and poor J. It goes against all their training to pull a leg that’s so badly broken and operated on, it took a few attempts before they really grasped pulling his leg, lol no pun intended…  In order to change his dressings the nurse’s had to lift it out of the cast, undo the wrapping, change the dressings, re wrap it and then put it back in the cast, all while pulling on his leg, I think every district nurse for miles came and had a go, they where great though working fast and as painlessly as possible, we can’t fault them we would never have got through those eight weeks with out all the nurses that came and helped, we owe them a grate debt.


Preparing to lift J’s leg out of the cast, all the cotton wool padding is cut so the nurse can lift it out, while me and another nurse prepair to whisk away the old padding and the cast so the nurse can put his leg back down cairfully all the time pulling on his leg. I cropped the photo so none of the gory bits would show, J wouldn’t want you to see those bits.

We got in to quite a good rhythm towards the end opening the cast, cutting the wrapping, lifting his leg out of the cast on to the footstool with his foot hanging off the end so the nurses could check his foot and all his other scars then re wrap the foot and anckle, then the lifting nurse would lift his leg, while we moved the footstool and re position it so J could rest while they wrapped the shin and knee area then one more lift and footstool move so they could wrap his thigh. Then the final lift and pull so me and a nurse could re position the cast and the lifting nurse could gently lower the foot and leg back in to the cast all the time pulling to create traction. By the end of it we would all be sweating, and if we all got it right J had suffered only a little pain. 


You can just see in the back ground the bottom half of the cast that we had to lift J’s leg in and out of to dress it. During the eight weeks J started to get a pressure sore on his heal, so sometimes we had to take the top half of his cast off at night so his leg and foot wasn’t under pressure for a few hours. The nurses tried everything to prevent a pressure sore forming it came close but they managed to keep it at bay.

Getting up and down the stairs was another challenge, I had to walk behind him going up as he was wobbly on his feet, I hate to think what would have happened if he’d fell I doubt I would have been much more than something softish to land on… coming down was safer, on his bottom with me holding his cast laden leg… one step at a time as they say…


(He’s shy) I adapted J’s trousers and made a Velcro fastener on one side so he didn’t have to worry about getting his leg in and out of a trouser leg.

We settled in to a routine J’s leg started to heal and his pain levels reduced.

and then…

 he fractured his right wrist in a bad fall, it wasn’t the first or last but it was the worst… 


now J had one ordinary crutch and one gutter crutch to walk with, and a wrist in a blue cast from his fingers to his elbow.

Sometimes I think if someone wrote this as a novel everyone would think how far fetched it was…

Slowly and for J very painfully the eight weeks passed as summer turned to autum, another autum missed by J, his favourite season, we finally reached the magic eight weeks and it was October 2016 and time for the second op, replacing all the prosthetic metal work and seeing if they had managed to kill the bug…

J once again left for oxford and we waved him goodbye yet again… 

Despite J’s worries the second op went well with less complications, this time we all went up to visit. J loved seeing our son and having company in the first few days after his op… not long after we came home they got him up and about starting physio, and with in two weeks he was home, original bug free and on anti fungles for a possible secondary infection, but one much easyier to get rid of… J started physio, and discovered his left, still non bendy leg was now two and a bit inches shorter than the other hence all the falling over, he’s since had special shoes made which make it easier for him to stay upright, till he takes them off and forgets his legs are difrent lengths… take your laughs where you can get them folks… 

Id like to say at this point a deeply grateful thank you to J parents for taking me and our son to see J so much over this awful time it really helped me and L and I know it helped J to have us close by for at least some of the time, I know it must have cost a lot, and not just in energy… 

J passed his first year of the PGCE and when talking to his teachers and apologising for the quality of his final essay, his teacher said when you have a teacher who can teach students with such profound support needs, as well as you do, we don’t worry about the quality of an essay… how lovely was that….

I passed my TDL as well and I had started back to work on reduced hrs for obvious reasons…regardless of my caring responsibilitys I had learnt a valuable lesson about the limitations I sometimes forget that ME and Fibro place on me and how pushing those limitations can be bloody stupid… I’m still trying to recover, I’m not really managing that yet, consiquently, I have not extended my hours even now.. I learnt my lesson I have limited capacity for a reason and I’m still paying the piper for last year… 

Our son has been diagnosed with high functioning autism to add to the sensory processing disorder, he calls it asparagus syndrome I like his sense of humour. It’s nothing we didn’t expect and he’s still just L at the end of the day… with all his joys and challenges… 

Fast forward to July 2017 lots has happened this year, J completed his commission a bitter sweet experience, and he’s going back to college to complete the second year of the PGCE. It’s going to be difficult for him but he wants to get it done because…


(J’s commission, Sorry about the iffy photo)

 J’s having counselling for a possible amputation, as well as meeting up to chat with people that have had the op…

 J’s new prosthetics won’t last ten years probably, maybe a good five or eight maybe, he’s 46, the older he is the harder it will be for him to adjust to a prosthetic limb.  I don’t think he wants to lose any more years to the non bendy leg. It’s is most likely J will have an above knee amputation after he finishes college in 2019… the Long Road continues… 

Oh and I have been diagnosed with AF, Atrial fibrillation… 😊 I have a heart condition… YAY…

I think now you can see why it’s taken me so long to put this all down.

And just because they can the DWP have just told J that his ESA will stop in September as he will no longer qualify under the 365day rule… again…

And worryingly J has been complaining that his leg hurts… I’m hoping with every breath that it’s a healing pain…

and I’m still really really tired…

Live long and prosper my people…

Dxxx

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Hi folks, well that time out really was a time out… lol  The last part of our story was in Jan 2015 and it’s now July 2017, and what a long road we have been on…

At the end of the last our story post, J’s surgery had been cancelled, the Drs decided to stop his antibiotics and  he’d decided to get on with his life and despite several setbacks he was on the first of many tiny steps towards a new direction for work an career.

During this period we managed to get a referral to the Autistic Spectrum Disorder team for our son for an assesment, we where on the waiting list, but it was going to take approximately 18months before we could see them… oh the joy… 

Strangely and by seeming coincidence, the course J needed to do, in preparation for the PGCE and working as a teacher the PTTLS course, was going to cost £600 and seemed to be beyond us, when J’s dad happens to mention that a local group he had heard of (he spent most of his working life as a youth worker) was doing a PTTLS like course and that he would enquire aboout it… a couple of days later he contacted us with the info and said ring up, I think it’s free… Wow what a score, J phoned and booked on the course, it was a six week crash course and it was free… woohoo… and that wasn’t the strange bit, the course was being held in the business park literally over the road from us or behind the houses over the road from us, a very short ten minute walk from our front door, how awesome was that…   lol… 

J through himself in to the course battling some significant anxiety, he had been away from the work/education environment for a long time, but despite this he completed the course with flying colours… very proud 😊

At this point J started volenteering for the college and started accompanying me to work as my teaching assistant learning about how we do all the paperwork involved in teaching and the hands on teaching process. Experiencing the ins and outs of teaching people with mental health and disability issues. All in preparation for college in September  2015…yes he was offered a place on the PGCE part time, I became a fan of this moving forward thing, so much so I applied to do the TDL level 5 myself, (Teaching Disabled Learners) as well as taking on more hours… (in retrospect not the most sensible idea..)

Summer hols some time to prepair for all the stuff we had signed up to do yikes… and a chance to go camping for a long weekend… hello Beth… lol… worst weather ever, 50 mile an hour winds and torrential rain… but we survived and had a great time. Even though it nearly killed us both, note to self theres nothing wrong with clean sheets and room service… 

September came and J started his course, he was alocated a mentor and placement, teaching horticulture to students with learning difficulties and some PMLD students. These where students with profound and muliple learning disabilitys, the problems J students had ranged from Autism and Down’s syndrome, to students that couldn’t walk, talk, read or write. He also continued to work in my class teaching students with depression and anxiety as well as some other mental health problems such as schizophrenia, bipolar disorder, borderline personality disorder, multiple personality disorder and autism. So quite a selection of different learners and different experiences.

J coped really well, surprising everyone including himself at how quickly he settled in to teaching, seeming to find teaching even the most challenging students with professionalism and compassion as natural to him as painting has been for years, did I ever mention J’s an artist? He even took on a commission to do a painting of a friends home, this moving on thing was really out of control… (the run away train when down the track and she blew….) lol…

We both settled in to student and teachers lives spending most of every day doing paperwork…I’m not kidding!

January 16 came and I was asked to take over a ceramics class, yay teaching my specialism what more could I ask and the extra money was a god send as we where struggling because of the 365day rule… in February J started to complain his leg hurt, just aching and we put I down to working to much, a week or two later he went to the GP as his pain was getting quite bad, the GP said nope nothing wrong just rest more and take some pain relief, luckily it was almost Easter so we didn’t think much of it.

Just before Easter I was asked to cover another class because the teacher was off ill, I had been doing some cover work over the last few months just the odd extra class here and there so I was used to dropping in to a class, this was a horticulture and art class and was a whole day, now I was beginning to realise that wanting to do something and actually doing it where very far from the same thing… but money needs sometimes over rule our better judgement. I was doing well on my TDL, working as much as I dare and trying to make up for the lack of income that was by no means J’s fault.

Easter came and J’s leg wasn’t improving if anything it was worse, the same GP still insisted nothing was going on, no infection he said just rest… this was the same GP that had missed J’s infection before so we where not convinced and started to watch J’s symptoms more closely…

The Easter holls finished and we both started the final push J was working towards the end of his first year and I was working towards my final essay and resuch project as well as working. By this time it was mid may and J suddenly had a pain attack when I wasn’t home. When he couldn’t reach me he got our son to phone grandad and he called an ambulance, Jon was in agony easily as bad as some of his early pain back in 2012-13 when he had the bone infection. With his history the paramedics decided to take him in and he spent an over night stay in our local hospital in lots of pain. They sent him home the next day, they couldn’t find anything wrong.

J tried to carry on going in to class and doing his resurch project on comunicating with PMLD students that couldn’t speak or write, a fascinating and frutefull piece of work that shows promise for improving communication between staff and students.

Finally after nearly 18 months of waiting our son had his assessment for Autism but it would be some time before we would get the results.

A couple of weeks later J was rushed in to hospital again in agony, this time he was there for ten days while they tried to get his pain under control. This time they told him you have an infection but we can’t find it, we can’t pinpoint where it is but we know you have it. By this time J had a small red patch on his leg just above his knee, things where not looking good. The Drs finally discharged him because he had an appointment to see his specialist in oxford the following week. That appointment got cancelled and J muddled through another couple of weeks of college.

He finally got to see his specialist at the beginning of June and as we suspected they confirmed his bone infection was back with avengance and they had no choice now they would have to operate and do the op they had cancelled in 2015.

To be continued… Dxxx

Hi folks..
I know its been awhile… busy busy as ever…
Our story is a twisty turny thing that seems to have a life of its own… at the end of my last post we had given up on Access to Work doing any more than helping with transport costs. We where still waiting to here from the DWP about PIP this was in March we had been waiting since September…
We where also waiting to find out if J was going to be made redundant… all on top of waiting for our sons SEN assesments three yrs and counting…
my fibro… J’s cancer  and looking after our son with SPD…
So now in the middle of August where are we and whats going on…

Well at the begining of April J was told he would be made redundant but would have work to the end of June… all the time working in a job that required him to be standing on his leg and in pain…(I have some choice words id like to say to them, they basicaly tortured him and set his recovery back possibly perminanely for eight months then kicked him out… grrrr)… At the tail end of April they told J he wouldnt be working through till june and he left the company at the end of the month… his redundancy package was all over the place and he was not paid when he was told he would be plunging us in to further debt… however temporary… at the begining of May he got the first half of his redundancy and we where able to sort most of our over due payments, paid and caught up on things we had got behind on when he had been off sick after the surgery.

At the begining of May J saw his consultant who thought he may have to have more surgery the prostetic knee joint seems to have malfunctioned very rare apparently… to be honest we are running out of rare things that can happen… (touch wood) we have to wait now to find out what, when, and if he has to have more surgery…

Towards the end of May J got a letter from the DWP apologising for the delay in his PIP assesment decision…not the letter we wanted after nearly nine months…

A couple of weeks later we had the decision through… low rate care and low mobility both of which would have been high rate if hed been assesed when he applied… but not to put a dampener on it… the backdated pay helped pull us out of a pit and has helped take the weight off of us trying to get through our driving tests… as J can no longer cycle… or walk very far… and neither can I…

So here we are in the middle of August J has had all his redundancy and is free off the company…
We are no further forward with our son’s assesments nothing has been done in the last few months… all his refferals to the social pathway, computer specialist and child mental health team have not materialised yet nor have we had the final report from the sensory pathway…

J has applied for several jobs some of which put him through to the final rounds but he heard no more after disclosing his medical history… (this makes me so angry he just wants a job any job he can do)…this has been getting him down and by way of trying to cheer him up I went in to a local new age shop and asked if they would stock prints of his work if I could convince him they wanted them… they loved them and asked me to tell him to get some to them asap… you can see his work here. So that’s one possible outlet or alternative work option.
And im still trying to keep it all together… the garden needs doing the bathroom needs decorating and im all out of spoons…

At the end of July I passed my driving test yay and J spent some of his precious redundancy getting some prints done at a fabulous printers called Monkey Puzzle Art Printers on the north coast of Cornwall, lovely supportive people who loved J work and helped me to convince him he can make money at this…

J is now in the process of setting up a blog and websites FB stuff as well as producing works he’s hoping to sell at some point…

Now for the bad news, J has had to put his job searching on hold because at the beginning of September he has to go back in to hospital to have two further big ops… The first will involve the Drs removing all of J prosthetic bone implants and prosthetic knee… Because it’s not working…They will implant a spacer and antibiotic cement to keep his lower leg attached to his upper leg for six weeks while they blast his body with an intense course of antibiotics to try to kill the MMSA bone infection he got during his first surgery… Then he will go back in and have new bone implants and prosthetic knee joint put back in… They have to be new to eradicate the infection… They need to get rid of the infection not only so J doesn’t die but also because it’s causing bone necrosis at the prosthetic join which is causing further problems with his prosthetic… He is at time of writing still cancer free so we hang on to that…

So job hustings on hold as we all hold our breath and preparing for the roller coaster ride to start all over again, this will reduce his ability 100% and we’ve just learned he no longer qualifies for ESA as my earnings and Working tax credit just scrapes over the 7,000 a yr limit… any more good news?

In the mean time we are trying to have as much family time as possible just I case 😦 and finishing the decorating and the garden as well as helping my mum decorate her hall… Sigh oh and I was diagnosed with ME as well as Fibro… If the gods are listening I’m still trying to hold it all together some help would be appreciated and I don’t need any double edged blade learning lessons about being careful what I wish for… We just wanna get through and still be a family surviving the onslaught on the poor and working classes by this government like we don’t have enough worries…

Take care everyone… Dxxx

Hi peeps this is a post about Access to work inspired by Kaliya Franklin’s blog post

The ‘Scrounging Scum’ to ‘hard working, tax credit claiming, socially acceptable scrounging’ journey 

But it’s also a way for me to get some stuff out there so it’s not only in here anymore… *Warning* it will be long…

As most of you know I have Fibromyalgia among other things…

In 2009/10 I first realised something was going to happen to my Incapacity benefit… that I would at some point in 2010 be reassessed for something called ESA… Having a fluctuating condition, I quickly came to realise, having listened to accounts of the process my friends had gone through that it was unlikely  I would get through as I had been working on higher permitted work for three years so I started to look for alternatives.

I came up with the idea of starting my own business as a designer maker and keeping the teaching job I was doing… So I signed up for work choice that was a rocky road to say the least they where just not set up for self employment… My business has yet to make any money… sigh…

During this time I made my first application to Access to Work… to find they couldn’t help with my job because I had found it myself and hadn’t used Job Center Plus to get it so I fell at the first hurdle.

Next came the application for help with my business… I phoned Access to Work to start the ball rolling but because I was with Work Choice they wouldn’t accept my application and re directed me back to Work Choice. Work Choice said they didn’t deal with Access to Work and knew nothing about it… Fell again at the second hurdle…

In October 2011 I went P/T self employed, I had no funding and no stock so spent the winter months making work as and when I could afford materials and doing small local craft shows.

Towards the end of my first year in which I had made lots of work and had managed to go to several craft shows I decided I really needed support from Access to Work so contacted them again. This time they passed me to an adviser who asked to have details of the travel I expected to do in mileage and cost as well as time I might need a support worker and approximate cost along side any equipment needs I might have, I came off the phone thinking how am I going to work all that out… I was at a bit of a loss…

During this year my partner  J had developed a painful knee and had been in and out of hospital for tests and scans, some of them in Oxford, we live in Cornwall.

Then J was diagnosed with bone cancer (2012) a very rare one and he had to have a serious operation to remove his knee and a big chunk of his upper thigh bone and some of his shin bone and have them replaced with prosthetic metal implants the upper rod almost reaching his hip and the lower rod going half way down his shin bone… (*try to remember this description for later)

Access to Work and pretty much every thing else was forgotten at this point, though I kept my job going as I realised my two and a half hr job and my P/T business would soon be the only income we would have.

Just before his op I contacted Access to Work as I realised I was going to need help because not only would I need to keep my job but my Partner would no longer be able to care for me or my son I was going to have to do it all…

When I phoned my adviser there was a message saying he no longer worked for Access to Work and I should contact the main office… I had to start all over again… I phoned and was told an adviser would phone me back…

They never did…

After the op J came home it had been hard coping on my own with a little help from social services, while he was away but having him home was hard to as he could hardly walk and was on a lot of pain medication…We settled in to a routine when two weeks later he developed symptoms of a tummy bug… I had to fight the GP to get him to come out… My partner was rushed to hospital with pneumonia and two blood clots on his lung, he was in hospital for another week…

Christmas was just round the corner so I had to do some craft fairs as this is one of the busiest times of year and I needed to try to make some money…. Once again I considered contacting Access to work but I just didn’t have the time. J was still on Statutory Sick Pay so we where doing ok…

January  2013 came and J started to feel cold all the time we thought it was just the weather, then he lost his appetite after a few days I said you need to see the Dr, so we booked an appointment… The morning of the appointment J collapsed in the kitchen his leg had gone very red, I rushed him to the surgery and the Dr saw him straight away… she called an ambulance which we had to wait an hr for they where all busy… in that hr J went from sick to very sick and in extreme pain… when we got to the hospital they kept him in A&E for several hrs, then suddenly started rushing about giving him meds they thought he had an infection… over the space of the next ten days we nearly lost him a couple of times he was delirious with the pain because they couldn’t get it under control even with very strong meds and their was little to nothing I could do to help except be there as much as I could trying to share his pain… he had two wash outs to try to get the infection under control… they basically opened up his scar and jet washed the tissue and prosthetics to get the muck out… it didn’t work and he got sicker again… at this point they transferred him to Oxford, I knew how sick he was and how close it had come to losing him so this was really hard as I couldn’t go with him… I had to try to keep things as normal as possible for our son and try to keep my job going… He was in Oxford for a further twenty odd days and had another wash out… The bone infection specialists devised a treatment of combination antibiotics administered via pick line, which started to work and he started to recover, we managed one visit while he was there but it was very hard on us all being so far apart…

J was in hospital for just over a month, leaving me to manage on my own… just as I need to be doing my tax returns lol… it doesn’t rain less it pours…

When J came home he still had the pick line in and had nurse visits every day to administer his meds… they sent a large box of meds with him id never seen so may boxes of injections and tablets, our kitchen trolley looked like a chemist shop… he was very weak and it took a lot of time for him to recover but the med combination worked and he eventually started to pick up and they removed the pick line and put him on meds by mouth…  a combination of two antibiotics twice a day specialised ones to combat the bone infection that likes to live on prosthetic implants… He’s still taking them now a year later…

By this time it was April 2013 and J’s SSP ran out and he applied for ESA, he was very quickly sent an ESA50 (within a couple of weeks) we went through the process of gathering his info and sending it off (exhausting)… the new crafting season was beginning… I had been trying to make new work all this time but it was difficult to get as much done as I would have liked… the notion of Access to work crossed my mind again but to be honest it seemed like more work than I could handle having to do all the leg work myself just wasn’t possible…

I had also started the Stats Campaign with Jayne Linney during the last couple of months as I needed a way to channel my anger and frustration at our misfortune and the treatment of the disabled…

In July J Drs decided his knee wasn’t bending as well as it should , as he could only bend it 35 degrees… So they decided to do a Manipulation Under Anesthetic (MUA). This was done in Oxford again and was supposed to take three days… unfortunately the op went badly and his scar was torn open and his quads tendon was damaged this is the one that keep your thigh muscles in place with out it your muscles would be like a rubber band rolled up round the top of your leg… our physio is good at graphic descriptions…lol  they had to open his scar up and repair the damage… he was in hospital for another week…

When he came home he wasn’t allowed to bend it for a few weeks and had it in a full leg splint… at the end of August a year after diagnosis he was allowed to start physio and began to bend it in a bending full length splint…

In Sept 2013 over two yrs since his first problems J went back to work, still on two crutches with a full leg splint…having never heard any more from ESA, he hadn’t been placed in either group and hadn’t had a WCA… J’s work offered a sit down day job, as part of his reasonable adjustments because his job involved standing for eight hours (*remember the description of his prosthetics) and walking about but they assured him they would find him a sit down job and on days as he could no longer ride his bike to work to get to work on the evening shift. He would be allowed a graded return all of which sounded possible… The works Drs assessment stated this was how it should be done…

We contacted Access to work about his transport and mentioned he’d need a in work assessment…

J started work and was put straight back in to his old job…

On his feet for the half a shift he was doing and they supplied a chair on wheels that J found dangerous to maneuver with one leg as it was like paddling with one paddle he kept going in circles… this continued… J complained that he couldn’t do the job… his work just said your not using the chair enough and that he was his own worse enemy… all this was done on evening shift… Slowly his hr increased to full time over a month, so did his pain and swelling, preventing his knee from bending at all… In September J applied for Personal Independent Payments… here at the tail end of February we still have heard nothing from the DWP about his PIP application…

Access to work sorted paying his transport but failed to do an in work assessment…

We phoned… they said we needed to re apply… Aaagghhh… We reapplied weeks went by nothing… We where told they couldn’t contact the company to do the assessment, J told them not to bother… he had lost hope, hope that they could help and hope that the company he had worked for over ten years would let them help because they clearly didn’t care about the pain and damage they had caused him… he got really low… so did I but I couldn’t show it…

In November we went to London to visit Parliament… 🙂

January 2014 came and we learned that we had been massively over paid by Housing Benefit despite offering to give them everything they needed and giving them everything they asked for , the same week J was told he was up for redundancy, just five months after getting back to work and being tortured by his boss who happily told him one day ‘I had a bit of knee trouble once it got better”…

During this last year our son has been assessed for sensory issues and is now being assessed for Autism… his OT thinks we have to work a lot harder as parents than someone with kids that don’t have his problems. As parents of an only child we thought all kids where this difficult… bless him we are still fighting to get him the help he needs at school…three years and counting…

and then my computer died… 😦

So we have had no assessment for ESA, limited help from Access to work and no news from PIP… and plunged in to huge debt by HB…

The support system for helping the sick and disabled work… doesn’t work!

Now it’s close to a new crafting season… Do I apply for Access to Work?

I know this was long I make no apologies, some things just have to be said out loud, I never want to forget what theses past two years have been like because it drives me to fight for others.

I want to say thank you to the staff of Tralisk Hospital Truro a hospital that often gets bad press but saved my J more than once and me and our son in the past, and The staff of the Nuffield Tumor team and the Bone infection Unit for saving J from the cancer and the bone infection… with out the NHS J would not be here…

I want to thank J family and my family for all their support and help this would have been a lot tougher with out them…

To his boss and his company I want to say Agghhh you ass holes… but I doubt ill get the chance… 🙂 And just so there are no doubt about the pain they caused him ive just found this lovely pic of his prosthetics… its not the full leg which is a shame but you get the picture…

J's Prosthetics

J’s Prosthetics

There are new things a foot… the stats campaign is ongoing… I’ve started a new Fibro campaign with fibrogirl called for the moment FibroMe ForAction, and I’m working on something I think might have been over looked, I need to work on that…

Thank you for staying with me I need to go wipe away my tears there hasn’t been much time for them in the last two years and I needed to acknowledge in some way how crappy its been so I can move forward… J continues the meds and is slowly getting stronger… I’ve been in a massive flair since Christmas and quite low but I’m beginning to come back so watch out IDS I’m not done with you yet… Dxxx

PS i believe the National Service Bill gets its second reading tomorrow lets hope it dies…